ABOUT

The Cloud Bank is a self-help patient portal for people who want to monitor their vitiligo condition and treatment progression. This patient portal looks much like an electronic health record, but the similarities end there.

Traditional electronic health record systems are designed to manage individual patient care and to help optimize insurance company billing, but they are not very suitable for advancing medical research, even less so in the case of under-investigated diseases such as vitiligo.

CloudBank is a bio-informatics system that serves as a platform for integrating anonymous data from multiple sources, such as from health records, biobanks and laboratories, for downstream vitiligo therapy development. It condenses large volumes of research-quality data, enabling investigators to analyze multiple profiles, treatments and lab results. The anonymous information in this database allows scientists to research the causes of vitiligo, recognize the most effective existing treatments, and helps them design clinical trials for potential therapies.

Starting October 1st, the CloudBank is scheduled for a staged roll-out with functionality that will be continuously enhanced. The web portal is easy to use and offers patients an opportunity to anonymously collate, focus and streamline their vitiligo health data, treatments, photos, as well as take an active role in the fight against vitiligo. Another feature being introduced soon will allow users to check the internal database for vitiligo specialists, connect with them, receive a second opinion and review treatment outcomes.

The Cloud Bank portal website is overseen by an international committee of scientists and clinicians under the management of the non-profit Vitiligo Research Foundation (VRF). It is compliant with HIPAA and Meaningful Use Level 1 requirements. The Cloud Bank service is free for all vitiligo patients, sponsored by the VRF.

NO PERSONAL DATA COLLECTION GUARANTEE

The VRF is committed to protecting your privacy and developing technology that gives you the safest and most effective online experience. The VRF ensures the security of your anonymous medical information against unauthorized access, use or disclosure.

The VRF does not collect any personally identifiable information that may reveal your identity. However, information about your computer hardware and software may be automatically collected by the Cloud Bank portal. This information can include: your IP address, browser type, access times and referring web site addresses. This information is used by VRF for the operation of the service, to maintain high quality of the service, and to provide general statistics regarding use of the Cloud Bank website.

ABOUT VITILIGO

Vitiligo is an under-investigated skin disease that affects between 65 and 95 million people worldwide. Vitiligo is a generally unpredictable disease, which results in the loss of inherited skin color over the lifetime of the patient. It is non-lethal and it does not cause any organic harm, but it has a devastating socioeconomic and psychological effect on the affected person and their family, especially in populations with darker skin.

ABOUT VITILIGO RESEARCH FOUNDATION

The VR Foundation is a 501(c)3 non-profit, disease-specific foundation. As the nation's only organization addressing every phase of vitiligo treatment development, the VRF works with a diverse group of support organizations and individuals to achieve measurable and timely results. When it comes to finding a cure for vitiligo, the VRF expects to make a difference in our lifetime.

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